Addressing Ethical Challenges Related to Community and Patient Engagement in Health Research

Authors

  • Emily Cordeaux Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada https://orcid.org/0009-0004-4486-1707
  • Natasha Yasmin Sheikhan Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada https://orcid.org/0000-0002-0471-4735
  • Rhonda Boateng Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada https://orcid.org/0000-0003-2978-5545

DOI:

https://doi.org/10.7202/1112302ar

Keywords:

community engagement, patient engagement, lived experience, health research, power, ethics

Language(s):

English

Abstract

In this post-workshop summary, we describe three ethical challenges related to engaging people with lived experience as partners in health research. We share learnings and reflective prompts from our workshop delivered as part of the Canadian Bioethics Society Workshop and Community Forum held in May 2023.

(c) Han Han Li

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Published

2024-06-21

How to Cite

[1]
Cordeaux E, Sheikhan NY, Boateng R. Addressing Ethical Challenges Related to Community and Patient Engagement in Health Research. Can. J. Bioeth 2024;7:218-21. https://doi.org/10.7202/1112302ar.

Issue

Vol. 7 No. 2-3 (2024): Open Issue & CBS Workshops

Section

Conference Proceedings

License

Copyright (c) 2024 Emily Cordeaux, Natasha Yasmin Sheikhan, Rhonda Boateng

Creative Commons License

This work is licensed under a Creative Commons Attribution 4.0 International License.

The Canadian Journal of Bioethics applies the Creative Commons Attribution 4.0 International License to all its publications. Authors therefore retain copyright of their publication, e.g., they can reuse their publication, link to it on their home page or institutional website, deposit a PDF in a public repository. However, the authors allow anyone to download, reuse, reprint, modify, distribute, and/or copy their publication, so long as the original authors and source are cited.