“What Is PER?” Patient Engagement in Research as a Hit

  • Jean-Christophe Bélisle-Pipon Petrie-Flom Center, Harvard Law School https://orcid.org/0000-0002-8965-8153
  • Claudio Del Grande School of Public Health, Université de Montréal
  • Geneviève Rouleau Faculty of Nursing, Laval University
Keywords: patient engagement, research-based artistic work, experiential knowledge, patient empowerment, patient-oriented research, patient-centered outcomes, patient involvement

Abstract

Engaging patients in research conduct and agenda setting is increasingly considered as an ethical imperative, and a way to transcend views of patients as passive subjects by fostering their empowerment. However, patient engagement in research (PER) is still an emerging approach with debated definitional and operational frameworks. This song addresses the sometimes difficult encounter and elusive mutual understanding between researchers and patients. “What is PER?” is an impressionistic illustration of the challenges and issues that can be found in the universe of patient engagement in research.

Published
2018-07-06
How to Cite
[1]
Bélisle-Pipon J-C, Del Grande C, Rouleau G. “What Is PER?” Patient Engagement in Research as a Hit. Can. J. Bioeth. 2018;1:59-62. https://doi.org/10.7202/1058274ar.
Section
Art, Culture & Creative Work