“What Is PER?” Patient Engagement in Research as a Hit

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Jean-Christophe Bélisle-Pipon https://orcid.org/0000-0002-8965-8153 Claudio Del Grande Geneviève Rouleau

Abstract

Engaging patients in research conduct and agenda setting is increasingly considered as an ethical imperative, and a way to transcend views of patients as passive subjects by fostering their empowerment. However, patient engagement in research (PER) is still an emerging approach with debated definitional and operational frameworks. This song addresses the sometimes difficult encounter and elusive mutual understanding between researchers and patients. “What is PER?” is an impressionistic illustration of the challenges and issues that can be found in the universe of patient engagement in research.

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Art, Culture & Creative Work