“What Is PER?” Patient Engagement in Research as a Hit

  • Jean-Christophe Bélisle-Pipon Petrie-Flom Center, Harvard Law School https://orcid.org/0000-0002-8965-8153
  • Claudio Del Grande School of Public Health, Université de Montréal
  • Geneviève Rouleau Faculty of Nursing, Laval University
DOI: https://doi.org/10.7202/1058274ar
Keywords: patient engagement, research-based artistic work, experiential knowledge, patient empowerment, patient-oriented research, patient-centered outcomes, patient involvement
Language(s): English

Abstract

Engaging patients in research conduct and agenda setting is increasingly considered as an ethical imperative, and a way to transcend views of patients as passive subjects by fostering their empowerment. However, patient engagement in research (PER) is still an emerging approach with debated definitional and operational frameworks. This song addresses the sometimes difficult encounter and elusive mutual understanding between researchers and patients. “What is PER?” is an impressionistic illustration of the challenges and issues that can be found in the universe of patient engagement in research.

(c) Emanuelle Dufour
Published
2018-07-06
How to Cite
[1]
Bélisle-Pipon J-C, Del Grande C, Rouleau G. “What Is PER?” Patient Engagement in Research as a Hit. Can. J. Bioeth. 2018;1:59-62. https://doi.org/10.7202/1058274ar.
Issue
Vol. 1 No. 2 (2018): Open Issue
Section
Art, Culture & Creative Work

Copyright (c) 2018 Jean-Christophe Bélisle-Pipon, Claudio Del Grande, Geneviève Rouleau

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