Deficit-Based Indigenous Health Research and the Stereotyping of Indigenous People

  • Sarah Louise Hyett Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton; Faculty of Medicine, University of Toronto, Toronto, Canada
  • Chelsea Gabel McMaster Indigenous Research Institute; Canada Research Chair in Indigenous Well-being, Community Engagement and Innovation, McMaster University, Hamilton, Canada
  • Stacey Marjerrison McMaster Children’s Hospital; Department of Pediatrics, McMaster University, Hamilton, Canada
  • Lisa Schwartz Department of Health Research Methods, Evidence, and Impact; Centre for Health Economics and Policy Analysis; Arnold L Johnson Chair in Health Care Ethics, McMaster University, Hamilton, Canada
Keywords: Indigenous Research, Indigenous Peoples, Deficit-Based Research, Strength-Based Research, Health Research, Stigmatization, Ethics

Abstract

Health research tends to be deficit-based by nature; as researchers we typically quantify or qualify absence of health markers or presence of illness. This can create a narrative with far reaching effects for communities already subject to stigmatization. In the context of Indigenous health research, a deficit-based discourse has the potential to contribute to stereotyping and marginalization of Indigenous Peoples in wider society. This is especially true when researchers fail to explore the roots of health deficits, namely colonization, Westernization, and intergenerational trauma, risking conflation of complex health challenges with inherent Indigenous characteristics. In this paper we explore the incompatibility of deficit-based research with principles from several ethical frameworks including the Tri-Council Policy Statement (TCPS2) Chapter 9, OCAP® (ownership, control, access, possession), Inuit Tapiriit Kanatami National Inuit Strategy on Research, and Canadian Coalition for Global Health Research (CCGHR) Principles for Global Health Research. Additionally we draw upon cases of deficit-based research and stereotyping in healthcare, in order to identify how this relates to epistemic injustice and explore alternative approaches.

Published
2019-11-01
How to Cite
1.
Hyett SL, Gabel C, Marjerrison S, Schwartz L. Deficit-Based Indigenous Health Research and the Stereotyping of Indigenous People. Can. J. Bioeth. [Internet]. 2019Nov.1 [cited 2020Jun.6];2(2):102-9. Available from: https://cjb-rcb.ca/index.php/cjb-rcb/article/view/136
Section
Articles